NDIS and You

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The National Disability Insurance Scheme (NDIS) is a new initiative to provide funding and supports to people with permanent and significant disabilities across Australia. It is being progressively rolled out across states and regions.

The NDIS have developed the NDIS Access Checklist to check your eligibility or you can contact the NDIS directly for more information.

Does being an NDIS participant impact my access to Epilepsy Foundation services?

The Epilepsy Foundation is a registered NDIS provider and is currently delivering services for people with epilepsy in areas where the NDIS has already rolled out.

If you have an NDIS package the Epilepsy Foundation will still be able to support you. However, you will first need to make sure that Epilepsy Foundation services are included on your NDIS plan. You will need to do this at your NDIS planning session.

Before attending your NDIS planning session we advise you to write down what Epilepsy Foundation services you are already receiving and what services you would like to receive. We have developed a client planning tool to support you in this planning process.  If you are an NDIS participant and the Epilepsy Foundation services are not in your plan, we will not be funded to provide you these services, however we can continue to support you on a fee for service basis.

Our epilepsy support workers are available on our InfoLine to speak with you if you have any questions about this or would like assistance with completing the tool.

Our flowchart provides the steps you need to take to ensure you can continue accessing Government funded supports from us.

Download the Preparing for your NDIS meeting checklist (PDF 257kb)

Download the NDIS flowchart (PDF 37kb)

Epilepsy Foundation services provided under the NDIS

The Epilepsy Foundation provides a range of support services to individuals with epilepsy.
Services include:

  • Working with an epilepsy support worker to better understand your epilepsy and learn self-management techniques.
  • Assisting you to develop an Epilepsy Management Plan.
  • Providing training around emergency medication administration.
  • Meeting other people living with epilepsy through our support groups and getaways.
  • Working with an occupational therapist to improve your safety at home and increase your independence.
  • Learning practical strategies to manage memory difficulties.

NDIS Roll Out

The National Disability Insurance Scheme (NDIS) is being introduced in stages across Australia.

People currently receiving support through Government funded programs across Australia may be eligible for NDIS funding. It is anticipated that by the end of 2019 the NDIS will be fully rolled out across Australia. To find out when NDIS will come to your area click on the relevant link below to take you to the NDIS website:

Roll out of the NDIS in Victoria

Roll out of the NDIS in New South Wales

Roll out of the NDIS in Queensland

Roll out of the NDIS in Northern Territory

Roll out of the NDIS in South Australia

Roll out of the NDIS in Western Australia

Roll out of the NDIS in Tasmania

Roll out of the NDIS in the ACT

 

Getting Ready - The “Know Me Support Me” - Epilepsy Pre-Planning checklist

To help you prepare for your NDIS planning session we have developed an epilepsy pre-planning tool. This checklist can assist you in identifying the impact epilepsy has on your life and what supports might be beneficial in managing and living well with your epilepsy.

You will also need to think about other aspects you want NDIS to support, including epilepsy services not provided by Epilepsy Foundation, or supports for other conditions you may have.

Click on, download and complete the “Know Me Support Me” – Your epilepsy support and NDIS: Preparing for your NDIS meeting checklist (PDF 259kb)

We suggest you take someone along with you when you have your meeting(s) with the NDIS planners.

To find out more go to NDIS website and Who can access the NDIS?

Service Providers - NDIS and Your clients

Getting Ready – The key things service providers need to know 

It is essential to recognise your client’s goals for living well with their epilepsy and ensure their needs are included in their plan; otherwise they may miss out on support from the Epilepsy Foundation.

Epilepsy Management in the Disability Sector – A resource for better practice

This resource is designed to provide information about what better practice in supporting a person with epilepsy look like and why this is important.

Download the resource here (PDF 613kb)

Support from the Epilepsy Foundation includes:

  • epilepsy assessment, education, improved self- management development of an Epilepsy Management Plan;
  • Emergency Medication Management Plans;
  • building capacity to manage memory and cognition difficulties;
  • functional assessments and home assessments and recommendations to improve safety and increase independence in all activities of daily living.

Recommendations may include home modifications, equipment prescription, memory aids for daily living, and epilepsy specific aids such as cooling vests, helmets, seizure mats and personal alarms.  The following links provide further information:

Resources for people with a disability living with epilepsy

The resources you will find here will give you information about epilepsy in an easy to read format including information about what epilepsy is, what types of seizures you may have, how they may feel and what the triggers may be. You will also find information about medication and their possible side effects and also how to keep yourself safe in case you have a seizure.

The resources have been developed following input from people living with epilepsy and their families through an Australian-wide survey. The purpose of the survey was to find out what supports were lacking in the disability services from the perspective of people living with epilepsy and their families. We also surveyed disability services to gauge their understanding of epilepsy and capacity to support people with epilepsy.

Learning About Epilepsy: an easy English booklet

This booklet describes epilepsy in straight forward language with the use of pictures.
Click here to listen to the booklet (for example for use on your ipod or smart phone)
Click here to download in Word format (for example for use by people with a vision impairment)
Learning about Epilepsy Easy English (PDF 1.1mb) (for example for use on an ipad)

This booklet is also available in talking book format (DAISY). Using this format, you can increase the size of the text and pictures and the text is accompanied by audio.
You will first need to download the free software – click here to download the DAISY software.
Then click here to download the zipped files – Part 1 and Part 2 (You will need to download and extract these files into a single folder to use them with the software).

Epilepsy Management in the Disability Sector – A resource for better practice

This resource is designed to provide information about what better practice in supporting a person with epilepsy look like and why this is important.  You can use this when talking to your Disability Support Worker or carer.

Click here to download the resource (PDF 613kb)

My Epilepsy Medical Review Appointment

This booklet helps the person prepare for an epilepsy appointment with the help of their support person.
Click here to download a pdf version (PDF 165kb)