Blog

Isabella’s Story

  Isabella was diagnosed with epilepsy at the age of five. She experiences absent, focal and to...

Remy and Nathalie’s Story

  Remy has lived with epilepsy since childhood. Over the years, the stigma associated with epil...

Keira and Sarah’s Story

  Keira has lived with epilepsy since her teenage years, though formally diagnosed only recentl...

Nathan’s Story

  Nathan experienced his first seizure in 2017, with a second following almost three years late...

Lucy’s Story

  Lucy was diagnosed with childhood absence epilepsy at the age of four.   “Absence epilep...

Riana’s Story

  Riana’s experience with epilepsy began at a very early age when her mother noticed some out o...

Paediatric Palliative Care National Action Plan

  Australia’s first Paediatric Palliative Care National Action Plan (PPCNAP) boldly seeks to raise a...

Michael’s Story

Michael was diagnosed with epilepsy as a result of two brain surgeries in 1969, but has been seizure...

Sadie’s Story (as told by her mother, Jessica)

  Sadie was diagnosed with epilepsy at 14 months old. She experiences generalised (absence) and...

Ben’s Story

  Ben was first diagnosed with epilepsy in 2021, two years after he had finished high school. H...

Zoe’s Story

  At the age of 3, Zoe’s mother noticed that she had a very unsteady gait, which progressed ove...

NDIS Epilepsy Smart Australia Master Class

  On 15 March 2023, Victorian-based Epilepsy Nurse, Kelly Ogden, delivered an NDIS Master Class...

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