Latest News

Rebecca Maddern

Make March Purple 2023 with Rebecca Maddern

Presenter and Epilepsy Foundation ambassador Rebecca Maddern joins us for Make March Purple 2023! Fi...

Statement from the Epilepsy Foundation Regarding new clinical trials into sodium selenate for the treatment of epilepsy

Media Release   Statement from the Epilepsy Foundation Regarding new clinical trials into sodium sel...

Prof Sam Berkovic AC named Epilepsy Foundation’s Chief Medical Officer

The Epilepsy Foundation is very pleased to announce that Professor Sam Berkovic AC has agreed to be ...

Man getting a COVID-19 vaccine

COVID-19 Vaccine and Epilepsy FAQs

Q: Should I get the COVID-19 vaccine if I have epilepsy? A: Every person should talk to their GP and...

Lachlan’s Story (as told by his mother, Claire)

Lachlan was first diagnosed with Early Infantile Epileptic Encephalopathy at two and a half months o...

Tayah’s Story

In 2015, Tayah had her first experience with seizures at the age of 10, though not formally diagnose...

HOCKING’S MARATHON EFFORT FOR ROMAN

  Media Release October 23, 2023   As a former AFL player and now ultra-marathon runner, Heath ...

Matt’s Story (as told by his wife, Maria)

    Maria met Matt 18 years ago in Sydney. The two were friends for years before becoming ...

International Epilepsy Congress, Dublin, Ireland 2023

On the 2-6 September 2023, the 35th International Epilepsy Congress (IEC) was held in Dublin, Irelan...

Isabella’s Story

  Isabella was diagnosed with epilepsy at the age of five. She experiences absent, focal and to...

Remy and Nathalie’s Story

  Remy has lived with epilepsy since childhood. Over the years, the stigma associated with epil...

Keira and Sarah’s Story

  Keira has lived with epilepsy since her teenage years, though formally diagnosed only recentl...

Nathan’s Story

  Nathan experienced his first seizure in 2017, with a second following almost three years late...

Lucy’s Story

  Lucy was diagnosed with childhood absence epilepsy at the age of four.   “Absence epilep...

Riana’s Story

  Riana’s experience with epilepsy began at a very early age when her mother noticed some out o...

Paediatric Palliative Care National Action Plan

  Australia’s first Paediatric Palliative Care National Action Plan (PPCNAP) boldly seeks to raise a...

Michael’s Story

Michael was diagnosed with epilepsy as a result of two brain surgeries in 1969, but has been seizure...

Sadie’s Story (as told by her mother, Jessica)

  Sadie was diagnosed with epilepsy at 14 months old. She experiences generalised (absence) and...

Ben’s Story

  Ben was first diagnosed with epilepsy in 2021, two years after he had finished high school. H...

Zoe’s Story

  At the age of 3, Zoe’s mother noticed that she had a very unsteady gait, which progressed ove...

NDIS Epilepsy Smart Australia Master Class

  On 15 March 2023, Victorian-based Epilepsy Nurse, Kelly Ogden, delivered an NDIS Master Class...

Client Story: Catherine’s Story

Catherine was first diagnosed with epilepsy when she was 19 years old, after being referred to a neu...

Mason’s Story (as told by her mother, Gretel)

Mason was diagnosed with epilepsy around 2015 and experiences absence seizures, eyelid myoclonia and...

Op Shop volunteers at our Windsor store

Come join our Epilepsy Foundation Op Shops!

  Do you have a passion for fashion? A soft spot for second-hand? If so, we encourage you to jo...

NVW

Happy Volunteer Week!

May 16 – 22 is National Volunteer Week, and we want to take a moment to thank all of the wonde...

Woman shopping at Epilepsy Foundation op shop

Our Op Shops are Open!

Looking to fill out your post-lockdown wardrobe, or get stocking fillers for Christmas? Get ready fo...

Family with young child

Applications wanted for Rare and Genetic Epilepsy Consumer Advisory Group

Are you someone who’s been impacted by rare epilepsy? Do you want to advocate for and represent the ...

Epilepsy Risks and COVID-19 – Survey for people living with epilepsy

Has COVID-19 affected your experience with epilepsy? UK-based researchers are seeking to better unde...

Image of brain inside head

Volunteers Wanted: Reducing Epileptic Seizures in Patients with drug-resistant Temporal Lobe Epilepsy

Researchers at La Trobe University and Epilepsy Foundation are seeking volunteer research participan...

Children aged 12-15 with epilepsy eligible for Pfizer COVID-19 vaccine

Following advice from the Australian Technical Advisory Group on Immunisation (ATAGI), children aged...

Get ready to Walk for Epilepsy this October!

We’re bringing back the Walk for Epilepsy, and this time it’s bigger and better than eve...

Tribute to Dr Rosemary Panelli

Dr Rosemary Panelli (June 1952 – April 2021) played a pivotal part in building the Epilepsy Foundati...

National Epilepsy Support Service open six days a week

Our Support Team is available six days a week to provide advice, information, and assistance to peop...

You’re Invited to the Epilepsy Foundation Virtual Memorial Service 2021 on May 30

Epilepsy Foundation Chairman, Mr Joseph Azoulay, invites you to the Epilepsy Foundation Virtual Memo...

IBE & ILAE Joint Statement on Coronavirus Vaccine

The following statement was provided by the International Bureau for Epilepsy and the International ...

Virtual Event: Year in Review on Nov 26

Join us at 7.30pm on Thursday November 26 for a virtual event celebrating the year that was. ...

Epilepsy Specialist Series 2020

The Epilepsy Foundation was pleased to host a webinar with two of Australia's most pre-eminent epile...

New research shows 1,633 lives could be saved through seizure improvement

New research from Monash University shows a 10% improvement in seizure freedom would prevent 1,633 d...

SUDEP Action Day is coming up!

October 18 is SUDEP Action Day. Sudden Unexpected Death in Epilepsy (SUDEP) occurs when a person wit...

Childhood Epilepsy Specialist Series 2020

On Sunday, November 8th, the Epilepsy Foundation will be hosting a virtual public talk as part of ou...

2020 Virtual Memorial Service

Every two years, the Epilepsy Foundation holds its memorial service in tribute to our loved ones los...

Surviving COVID-19 from a psychological perspective: Advice for people with epilepsy and their families

The following article was produced by Professor Gus A Baker and Professor Steven Kemp on behalf of t...

Melbourne landmarks light up for Purple Day

Landmarks all over Melbourne lit up purple on Thursday March 26 to celebrate Purple Day for Epilepsy...

Living with Epilepsy Webinar Series: Epilepsy Safety and Self-Management with Professor Mark Cook

Living with Epilepsy Webinar Series: Epilepsy Safety and Self-Management with Professor Mark CookJoi...

Letter from the CEO on the impact of coronavirus

I wanted to reach out during these difficult times to reassure our community that we are closely mon...

Hand washing image

Coronavirus and Epilepsy

The COVID-19 (novel coronavirus) situation has entered a new phase. This viral infection is affectin...

Globe image

Epilepsy Foundation America and Epilepsy Foundation (Australia) Announce Joint Collaboration

Epilepsy Foundation America and Epilepsy Foundation (Australia) have announced a joint collaboration...

Deloitte Economic Burden Report

The economic burden of epilepsy in Australia, 2019-2020

Report finds annual cost of epilepsy in 2019/20 will be $12.3b The report, launched on International...

Back to top