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Please note, we receive and read all of your responses, however, due to our workload we may not respond immediately.  Rest assured, we will contact you to discuss your story and get your approval before sharing anything you submit here.

If you would like to instead speak with our Support Team, please contact our Information and Support Line directly on 1300 761 487.

Share Your Story

Use this form to submit your story to the Epilepsy Foundation. Your experiences help demonstrate the importance of support and research for people living with epilepsy and will be handled with sensitivity. We will be in touch to discuss and get your approval before sharing anything you submit here.

  • Tell us about your story in the text box below. Some ideas for what to include:

    - When was your first seizure? What were the circumstances, where were you and what happened?
    - Have you had a formal diagnosis, and are you now undergoing treatment? Has your treatment been effective?
    - How has epilepsy affected you and your family's lives? Have you experienced stigma or discrimination?
    - What are you hopeful for? Are there things you are optimistic about?
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