Below we challenge some common epilepsy myths that still exist today:
Myth 1: All people with epilepsy lose consciousness and have convulsions
The most common seizure we see on TV is called a ‘tonic-clonic seizure’. This is where a person falls to the ground and starts to shake (and often in movies and TV they begin to foam at the mouth, but this is not always the case!). In fact, tonic-clonic seizures are one of over 40 different seizure types, some of which include quick muscle twitches, a brief loss of awareness, confusion or disorientation. A convulsive seizure was previously called a fit.
Myth 2: Epilepsy is a life sentence
Epilepsy is not necessarily a lifelong condition. While there is currently no cure for epilepsy, some childhood epilepsy syndromes are ‘outgrown’ and around 70% of people with epilepsy will become seizure free with anti-seizure medication. Epilepsy is considered to be ‘resolved’ in some people who have not had a seizure in 10 years and been able to stop medication for the last five of those years.
Myth 3: Epilepsy is a mental illness
Sometimes epilepsy and seizures can be mistaken for mental illness. For example, a person may make unusual noises, use strange words and/or behave oddly when having a seizure. However, like anyone else, some people with epilepsy can develop mental health conditions, such as depression and/or anxiety. Click here for more information about mental health and wellbeing.
Myth 4: If you have epilepsy, you can’t drive
People with epilepsy can obtain a driver license if their seizures are well-controlled with medication, or if they fulfil the guidelines set out by the relevant driving authority in their state. Click here for more information about epilepsy and driving.
The latest edition of the Standards for fitness to drive came into effect on the 22nd of June 2022.
Myth 5: You should restrain someone having a seizure
Restraining someone during a seizure is more likely to agitate or harm that person (or you). A seizure will run its course and restraining someone will not stop or slow it down. Seizure first aid depends on the type of seizure. Click here for more information about seizure first aid.
You can also access the seizure first aid information sheet.
Myth 6: You should put something in a person’s mouth to stop them swallowing their tongue during a seizure
It is physically impossible to swallow your tongue. Do NOT put something in their mouth, as the person is unable to control their muscle movements during a seizure and they may bite down on the object and break their teeth, or injure their mouth/jaw (you may also harm yourself in the process). Click here for more information about seizure first aid.
Myth 7: If someone has a seizure they have to go to hospital
Not all seizures require hospitalisation. Most often, the person will just need time to rest and recover after a seizure, which they might be able to do at work, school or home. If you don’t know the person and witness them having a seizure, it is best to call for an ambulance (dial 000). Click here for more information about seizure first aid.