Everyone’s brain sends electrical messages to their body, which tell the body what to do. Seizures happen because of a disruption to electrical activity in the brain, leading to a change in a person’s movement, behaviour, and level of awareness and/or feelings.
Epilepsy is diagnosed by a medical specialist after a person experiences at least two unprovoked seizures. Epilepsy and seizures vary greatly between people.
Not all people who have seizures are diagnosed with epilepsy. In Australia, around 10% of the population will experience a seizure in their lifetime, but much fewer will be diagnosed with epilepsy. At the moment around 260,000 Australians, or 1% of our population, live with epilepsy.
Epilepsy occurs regardless of age, gender, cultural or socio-economic background. Epilepsy can develop at any stage of life, but it is more common in children, adolescents, and people over 60.
There are at least 60 different types of seizures. A person with epilepsy may experience one or more seizure type. Their behaviour during a seizure depends on the type of seizure and the area of the brain being affected. Click here for more information about different types of seizures.
Around 70% of people living with epilepsy will gain control of their seizures by taking anti-seizure medications (ASMs). For the remaining 30%, their epilepsy is considered to be ‘uncontrolled’ or ‘drug resistant’ and alternative treatment options, such as neurosurgery or vagal nerve stimulation, may be offered to improve or eliminate seizure activity. Some childhood epilepsy syndromes are ‘outgrown’.
Epilepsy impacts on people in different ways. For some people, living with epilepsy will not have a big impact on their life. Others may experience some physical, psychological and social impacts. Epilepsy can impact on a person’s education, employment, lifestyle, health, social and family life.
Epilepsy is sometimes described as a “hidden” condition or disability, because it may not be obvious that a person has epilepsy, unless they have a visible seizure. Sometimes, even the person living with epilepsy doesn’t realise they have had a seizure.
Epilepsy research can help transform and improve the lives of people with epilepsy. There are now many Australian and international investigations trying to better understand epilepsy, discover new treatments and find a cure. Click here for information about research.