Our annual dinner is looking a little different this year! To make it even more accessible, we’ve moved the event online, and we hope you can join us as we look back at the year that was.
At this year’s dinner, we’ll focus on SYNGAP1, a rare neurological disorder that begins in early childhood and which often includes recurrent seizures, hyperactivity, and autism spectrum disorder.
You’ll hear from Danielle Williams, mum to two girls who live with SYNGAP1. Danielle will share her daughter’s stories, who were two of the first people in Australia to be diagnosed with this rare genetic condition.
We’ll also hear from Professor Steven Petrou, Director of the Florey and head of the Ion Channels and Human Diseases laboratory. As an expert in his field, Petrou will present his SYNGAP research and share insights about rare epileptic encephalopathies.
Bookmark this page and tune in at 7:30pm on Thursday November 26!
The event will also be available here for replay after the broadcast.
